Friday, December 31, 2010

12-31-10 Is this year over yet?

Sorry I have been so silent lately,  I am somewhat stabilized on the drugs I guess.  And this is my new normal.  My biggest issue is that I don't have any of my lovely "bounce" back.  And I am having some nasty skin issues this week.  Of course it is a holiday weekend.  And no one is returning my calls or emails.  At either Cancer Center.

I posted the question regarding the skin issues on the discussion boards  (http://community.lls.org/community/bloodcancer/livingwith/cml) but the boards are having technical issues and I don't have any responses yet.

But those boards are absolutely a life saver for me.  There is a discussion group for just about everyone, caregivers, family members and each type of leukemia group has a sub discussion about what it is like to live with this crap.

I am hoping that the new year is better.

I have three resolutions for the new year.  Each designed to bring some more fun back.
1.  Make a new recipe once a week.
2.  Go to see each of the different month's exhibits at the Conservatory http://www.metroparkstacoma.org/page.php?id=21
3.  Get out and do one cool Tacoma event per month.  This town actually has a lot to do, and I am just hiding here in my house.


I went to the conservatory this week to see the Paperwhite exhibit.  They had amazing amaryllis as well.

Well, that about wraps up my year.

I wish everyone the best of health and happiness in the coming year.

Caroline

Sunday, December 19, 2010

12-19-10 Fabulous Cookie Swap

Yesterday was the second annual cookie swap here at Casa Edmiston.  What a grand time was had!!!!  About 12 people showed up all bearing tons of cookies, so much so that we had to get a second table out of the garage to hold them all.  I had originally set up a 6 foot table, but half way through it was completely full!!!

I had spent quite a bit of time and energy to clean the house, which, I have to say, looks amazing when all the clutter is gone.  Sigh.  And I baked 6 different types of cookies to make sure that there was enough.  Which was a good thing since the first guest was a bit odd.  She asked to come a half an hour early, I thought to drop off her  cookies and then return later to pick up an assortment.  No, she wanted to take her assortment right away, she had another party to go to, and she needed to bring cookies to that one.  WHAT?  You want to take half of the cookies that I had baked before any of my other guests get there?  She is one weirdo.  I was so stunned, I let her.

But like I said, there were do many fantastic cookies brought by all, that it was ok in the end.

Everyone stayed for a very long time, for which I am truly grateful, I understand that this was the weekend before christmas and there was lots to do for everyone.  So it was doubly cool that they took the time.

I find the hardest part of hostessing is trying to sit and talk with everyone.  The house is really set up into two conversation areas, and I was bouncing back and forth between them, trying to make sure that everyone got some attention.  I even had guests from as far away as North Seattle and Snoqualmie and Olympia.  Very touched that everyone made it.

I was terribly clever and made a bunch of food that was pre-done, nothing had to be tended to once the guests got here.  Some deli meat and cheese, crackers, rolls, deviled eggs, Boy Dip (a mexican style dip that men just LOVE--it makes them grunt in happiness---truly, it is so funny to watch them, I have even seen one man hover over the crockpot that is filled with the meaty dip and glare at anyone who comes to take some, all without realizing he was doing that.  *giggles*), potato chips and dip, and all the coffee, tea and cocoa one could drink.

I think our coffee maker (a Keurig) made a few more converts at the ease and fantasticness of the coffee it makes.

I am paying for all the work and energy today, but it was totally worth it!  By last night, there was a lot of angry skin problems, couldn't sleep, my feet were burning up, and I was just exhausted.  Today there are other problems, but again, totally worth it!!!

I will NOT let Leukemia stop me.  I had an interesting thought the other day while listening to a Country song.  Dying is easy.  Living is hard work.

Kind of a downer ending to a happy post.  But real.

Friday, December 17, 2010

12-17-10 Holiday Cookies

Tomorrow is my annual cookie swap, so I have been slowly cleaning the house, don't really know what happened to the girl that was helping me, she called in sick one week, and poof, she was gone.  Oh well.  Have to find someone else I suppose.

The cookies have all come out great.  I made about 7 different cookies, with at least 4 dozen of each.  Each guest will bring their own 4 dozen cookies and we will all swap them out.  I have purchased cookie boxes so people can wrap them up and be ready to distribute as gifts!

I am looking forward to this a great deal.

So last I had written, the hot tub broke, the basement flooded and the tarp had blown off the trailer.  JR unfortunately said "well, at least the house won't fall down in the next week."

Silly man, tempting fate like that.

Three days ago, I went out the front door, and the house was falling down.  Specifically the gutter was hanging by a thread on the side of the porch.

I just laughed.  There was nothing I could do.  It wasn't going to go anywhere.  Ah well.

JR did not find any humor in it.  Sadly.

And then our neighbor Brian earned the Best Neighbor of the Week award.  Yesterday he knocked on the front door and asked me if I would like him to repair the gutter!  OMG!  Can you say fabulous.

So he took our ladder and 10 minutes later had fixed it!!!!!  He got my undying gratitude and a box of cookies!

This was the day after the window guy called me at 8:30 in the morning to tell me he was on his way.  (we did not have an appointment)  I was on my way out of town to Seattle for the day to see a client.  I phone up Bill on the other side of us, and he agreed to come over and supervise the window guy and lock up the house.

At the drop of a hat.

I have the BEST neighbors!!!!!

Also just had a wonderful holiday lunch with Steve and his wife, Jeanne.  Such nice people!  We met at Anthony's Seaport in Des Moines.  Yummmm.   And now I am going to crash.

I had three good days in a row and am now exhausted from feeling well.  I even managed to sleep the whole night through last night!  Woo Hoo.

Happy cookies to everyone.  And yay for congress for fixing the estate tax issue.....more on that later.  must nap now.

Monday, December 13, 2010

Been a While

So the latest Dr. report says the white blood cells are holding in the normal range, the red blood cells are as well.  The drug has worked remarkably well for that.  There is some concern with my liver numbers (don't know what that means) and she is concerned that the side effects are so severe still.  So we have another appointment in 2 weeks to check blood levels again.  If I am not doing better with side effects, she wants to talk about switching the medication.  I am not thrilled with this idea.  Better the devil you know..........at least this one is working!

Am now battling with the pharmacy company.  They cancelled my prescription without any documentation of why, and never called me.  Sigh.  They have apologized, but they have to redo the whole thing, and it takes time.  So I am almost out of medication and waiting for them to get their act together.  They also did something weird with the overall prescription and modified it from its 1 year amount to only a 3 month amount and now want a new prescription from the Dr. for the next shipment after this screwed up one.  But it took me 20 minutes to get that information out of them.  When were they going to tell me that little tidbit????

I have decided that I do not like having leukemia and want it to go away now....................I am tired of this.

Also, the basement flooded.  And the hot tub broke.  And the tarp blew off the trailer.  And JR is gone for two weeks with the Army.

Ack.   All of this will get sorted out.  Chin up, right?

Sunday, November 28, 2010

11-28-10 Funny bits

I saw these on the internet and decided to share a laugh or two with everyone.  I have bolded the ones I like best.


Ø Do not argue with an idiot. He will drag you down to his level and beat you with experience. 

Ø
 Going to church doesn't make you religious any more than standing in a garage makes you a car.

Ø  The last thing I want to do is hurt you, but it's still on the list.

Ø  Light travels faster than sound. This is why some people appear bright until you hear them speak.

Ø If I agreed with you, we'd both be wrong.

Ø  We never really grow up, we only learn how to act in public. 

Ø  War does not determine who is right - only who is left.

Ø  Knowledge is knowing a tomato is a fruit; Wisdom is not putting it in a fruit salad.

Ø  The early bird might get the worm, but the second mouse gets the cheese.

Ø  Evening news is where they begin with 'Good evening', and then proceed to tell you why it isn't.

Ø  To steal ideas from one person is plagiarism; To steal from many is research.

Ø  A bus station is where a bus stops. A train station is where a train stops. On my desk, I have a work station.

Ø  How is it one careless match can start a forest fire, but it takes a whole box to start a campfire?

Ø  Some people are like Slinkies ... not really good for anything, but you can't help smiling when you see one tumble down the stairs.

Ø   Dolphins are so smart that within a few weeks of captivity, they can train people to stand on the very edge of the pool and throw them fish.  

Ø  I thought I wanted a career, turns out I just wanted pay checks.  

Ø   A bank is a place that will lend you money, if you can prove that you don't need it.  

Ø   I didn't say it was your fault, I said I was blaming you.  

Ø   Why does someone believe you when you say there are four billion stars, but check when you say the paint is wet?  

Ø   Why do Americans choose from just two people to run for president and 50 for Miss America? 

Ø   Behind every successful man is his woman; behind the fall of a successful man is usually another woman.  

Ø   A clear conscience is usually the sign of a bad memory.  

Ø   You do not need a parachute to skydive. You only need a parachute to skydive twice. 

Ø   The voices in my head may not be real, but they have some good ideas!  

Ø   Always borrow money from a pessimist. He won't expect it back.  

Ø   A diplomat is someone who can tell you to go to hell in such a way that you will look forward to the trip.  

Ø   Hospitality:  making your guests feel like they're at home, even if you wish they were.  

Ø   Money can't buy happiness, but it sure makes misery easier to live with. 

Ø  Some cause happiness wherever they go. Others whenever they go.  

Ø   I always take life with a grain of salt, plus a slice of lemon, and a shot of tequila.  

Ø   When tempted to fight fire with fire, remember that the Fire Department usually uses water.  

Ø   You're never too old to learn something stupid. 

Ø   To be sure of hitting the target, shoot first and call whatever you hit the target.  
  
Ø   Nostalgia isn't what it used to be.  
  
Ø   Some people hear voices. Some see invisible people. Others have no imagination whatsoever.  
  
Ø   A bus is a vehicle that runs twice as fast when you are after it as when you are in it.  
  
Ø  Change is inevitable, except from a vending machine.

Friday, November 26, 2010

11-26-10 Best Envelope EVER

For everyone that has been following along with the funniest envelopes sent from Mom,  the latest takes the cake!!!!

"Princess C. R. Edmiston HRH and her consorts, JR and Chase."

LOVE IT!  Made us both laugh out loud.

Thanks Mom!!!

Wednesday, November 24, 2010

11-24-10 Happy Thanksgiving

Happy Thanksgiving to All!

The energy boost was short lived.  Today I am tired.  I was supposed to go to my fabulous friend, Kate's, house for turkey dinner tomorrow, but alas, don't think I have it in me.

So I stopped by the store--THAT was a treat!  Some horrid man in his wheeled basket kept huffing and puffing if I didn't move out of his way fast enough.  I know that I have used one in the past, but I was so careful not to piss people off and to stay out of the way of most.....but he didn't really look sick, just large.  Ok, so I don't really look sick if you don't know me either....all right, I will try to be nicer.

Got the smallest turkey I could find.  And some trimmings.  It will be a tiny affair.  Just the hubby and I.

Did I mention it was cold here?  Our pipes have frozen again.  So cooking might be interesting.

Ah well, I am thankful for all the wonderful people in my life, and I have a huge number of them!

Happy holidays!

Tuesday, November 23, 2010

11-23-10 BRRRRRR Snow! and Lasix

The Puget Sound region is gridlocked with 3 inches of snow and ice.  To all you who live in snow country, that might sound pretty woosy........and it is.  Except that since it rarely snows or ices over here, there are no snow plows and since we are so environmentally conscious out here, salt is considered a bad thing, so no salt goes down to MELT the ice and snow.

It has been fun to watch the news for the past two days, from my toasty warm couch covered in my favorite fleece pullover and blanketed with a warm blanket.  I felt very bad for anyone who tried to make it home from Seattle last night, especially those headed south towards Tacoma.  The one and only road south (I-5) was completely shut down for most of the night, stranding hundreds and hundreds of people in their cars, stuck on the highway for up to 10 hours.

They had a phone interview with some poor woman stuck in her car for 6 hours, and she was 7 months pregnant.  That made me upset, how awful for her!  And where do you piddle?  And what do you do if your gas runs out?

Then the phone rang at 3 am for JR to go to work at 5 am.  I was so worried about that that I could not go back to sleep without getting up and making him a huge thermos of hot coffee flavored with gingerbread eggnog to take with him.  It wasn't just HIS driving I was worried about, and he is a fabulous driver.  But he had to get in a van with a driver who is paid minimum wage, to be taken to his train 20 miles away.  That driver doesn't love my husband.  He will not make every human effort to make sure that he is safe.  Sigh.

At least it was going to be light out when the van came to take him from the office to the train.

Dark and slippery is worse than light and slippery.  Kind of.

We live on such a big hill, too.  There is a way down the hill that is longer but flatter, and he was going to make that call when he hit the main road down.  I haven't gotten a phone call and it is 11 am, so I am assuming that all is going well.

So I have also been having an interesting reaction to being put on the Lasix and Potassium supplement.  I have  ENERGY!  Yesterday was spent walking the doggie in the snow, racing with him around the bases at the ball field at top speed twice and then two more times at a walking pace, then tossing the tennis ball for about 10 minutes and then going back home to play with Gunner in his yard!  I have been singing my silly love songs to the dog, making up goofy words to old songs.  My favorite is "What do you get when you love a dog?  A smootch and a pootch to make it lovely, that's what you get when you love a digger...........snoot!  Lova lova lova dog. Yes, that, is what you get when you love your snooter-do."  Sung to "Never gonna fall in love"  with GUSTO.

And my brain seems to be firing on all cylinders again too.

I hope this lasts........



Now, all together, with Gusto!  "What do you get when you love a dog?....."

Friday, November 19, 2010

11-19-10 Latest Bloodwork and Eggnog Caramel Recipe

The white blood count is holding steady at a normal number, but red count is dropping, leading to more fatigue.  Dr. O expects it to drop a little bit more before getting better.  I am now on a water pill to get rid of extra fluid, and that means I also have to take a potassium pill (they are hu-normous!).  I have some puffiness around my eyes and my vision is a little blurry.

Next I have a consult being set up with an oral doctor to take a look at the lesions on my tongue.

And if I don't perk up soon, Dr. O is considering putting me on Ritalin to give me a jump start.

Yikes.

I was reviewing emails looking for a date, and had the odd realization that I only found out about the leukemia on September 29.  That is less than 2 months ago, and it feels like my life has just been completely taken over!

Oh well.

Not the perkiest of blogs...........

So the good news:  We are headed to Vegas for a lovely jaunt on November 30-December 3.  Yay!  I love Vegas.  We don't gamble, just enjoy the fabulous rooms and shows.  JR is going to play a bunch of golf (i don't have the energy for that yet), we are going to see 2 Cirque de Soliel shows, count em----TWO!!!

JR signed up to join the Cirque club and they sent along a special package offer, not only do we get to see the shows, we also get swag bags and have meet and greets with the performers and back stage passes!  Yipee!

This coincides with the Wynn offering us a huge discount, and upgrading us to the Encore!!!!  One really can't pass things like this up. Even if it means flying again.

We need to pick out a fabulous restaurant to try the famous chef food.  Vegas just gets better and better every year.  I don't think it hurts that that is where we got married.......

I am really looking forward to the trip.  Not much spending money in my pocket (probably about $25), but a lot can be done for very little.  I am planning a trip to the Bellagio to see the museum and take pictures of their flower display and the butterfly garden, and a trip to see the new City Centre and Aria, they must have cool stuff to look at, right?

Last time we were there, the casinos were so bare, you could actually hear the music playing on the casino floors!  There is no one gambling lately.  I just hope enough other gamblers show up to keep the lovely properties open, so I can come and visit and NOT gamble!  Tee Hee.

I made up a batch of my eggnog caramels and this time put this nifty smoked salt on top.  YUMMMMM.  Got such great responses, I thought I would post the recipe here:

Caramel:
2C Sugar
1C Brown Sugar
1 C Butter
2C Eggnog (You must use the real thing--not light)
1C Corn Syrup
1 t vanilla
1 t ground nutmeg

Put the Sugars, Butter, Eggnog and Corn Syrup in a large heavy stock pot.  Bring to a boil and up to 244 degrees, do not go any higher or the consistency will be off.  Take off the heat and stir in the vanilla and the nutmeg.  Pour quickly into a heavily buttered 13 x 9 pan and let cool 8 hours.  Turn out and cut into bitesized pieces.

I then put the smoked salt on each piece and wrap in waxed paper.  I have also dipped the pieces in chocolate and then put the salt on top of that.

Smoked Sweet Salt:
2 T Kosher Salt
2 T Raw Sugar (demerara sugar) 
1 t Liquid Smoke


Place all in a baggie and combine.  Lasts indefinitely.  




Ooops, almost forgot: today's get well card addressed to "Mrs. C. Rachel Maiden-Married, JD, Esq."


Priceless--


Sunday, November 14, 2010

11-14-10 Auntie Fay has left--Boo Hoo

Hello everyone,

We are back from Texas, and the day after getting home, Auntie Fay came to visit and we had a wonderful time.

While in Texas, on the second to last day, I was walking Dorothy's dog, when I looked down and saw that there appeared to be hundreds of nuts on the ground from the trees.  And they looked for all the world like pecans to me.  But who would leave pecans in the street?  So I gathered up a handful and walked back to the house and asked Dorothy about them.

Sure enough, they are pecans, but she looked at them with disdain, calling them "native pecans" and saying that they were too small to bother with.  Hmmm, they looked the size of pecans to me.   I have been known to drive for two hours, then trample over and scramble up the sides of mountains for mushrooms.  So walking next door and picking up pecans from the sidewalk seems pretty tame to me.  I hooked the dog back up in his harness, grabbed a grocery bag and headed back out the door.

I took the dog as my cover, so that anyone who saw me bent over picking something up would think it was a doggie present!  Clever aren't I?

I filled up my grocery bag and headed back to the house. Dorothy told me to look in the bottom kitchen cabinet and there would be a pecan sheller.  Sure enough, there was a contraption that looked like huge shears with a cup on the end.  She told me to cut both ends of the nut off, then split it down the middle and poof, two perfect halves would fall out.

She has bigger hands than I do.  I have short fingers and large fleshy palms.  And my poor palm kept getting caught in the gadget, so after the 4th clipping of my palm, with blood flowing, I put the tool down and said that there must be another way.

Sure enough, in the garage was the pecan cracker that she had taken from her Grandmother's house.  It must be older than the Ark, but it worked great.  Kind of a vise like thing that cracked the shells the long way and then you pick out the meat.

Dorothy thought that it was the funniest thing, me picking up the native pecans.  She had fond memories of shelling pecans, but only those that had been farmed.  Apparently they are bigger.

And you have to PAY for them.  Mine were FREE!!!!!

Dorothy was nice enough to let me take the nut cracker home to finish the job.

So after about 10 hours of shelling, I have two pint baggies full of the most amazing pecans.  They are much more flavorful than any pecan I have ever bought.  And at my normal hourly rate, why that means I have $2400 worth of pecans.

Hmmmm.  Maybe not the best measurement of value.

On our last day in Texas, we went out to the cemetary where JR's father is buried.  And that was very nice.  Very moving.  Then we flew home.  Sadly our flights were delayed so we ended up being over 4 hours later than we thought we would be.

Kate was fantastic and came and walked the baby dog so he wouldn't be too lonely.

Boy was he happy to see us!!!!

The next day Aunt Fay arrived, and we had a wonderful time cooking and planning things.  I think she was surprised at how weak I can become and how tired I get all of a sudden.  But she was terrific, and really helped me.  I feel very guilty for all the time I spend laying around.  I don't make the best patient about that sort of thing.  I am very good at taking my medication and doing research and keeping up with the latest developments with CML, but I HATE that I have no energy.

Even with no energy, I managed to have fun and we made my famous eggnog caramels, and this time we topped them with a new type of salt that I made from a new cookbook.  It was a smoked sweet salt!  On top of eggnog caramel?  You can't beat it.  I could make a fortune selling this stuff.  If only I could get up off the couch for more than 2 hours at a time!  Sigh.

Fay almost beat me at scrabble (my most favorite game, and one which almost no one will play with me anymore--I don't know why....).  I just couldn't "see" the words like I usually do.  I can almost always make a 20 point word or more, making 2 or 3 words at a time.  But this time I really just made one word at a time, mostly 8-12 points.  Until the last two moves I was behind the whole game.  And then she made words that left me the triple word score to use, TWICE.  I mean, what could I do, I had to take advantage of that.  And the last word of the game got me almost 40 points!  Poor Fay.  But she handed it to me, she really did.

@Fay: Smootch!

I called my Aunt Susan on the way home from the airport to thank her for sending the flea medicine.  The night we got home, poor Chase was so excited to see me, and what was the first thing I did?  Open the package from Susan and give him an oral flea medicine and put that sticky oil on the back of his neck.

Luckily he forgave me.  And by the next morning, all the fleas were dead.  Death to Fleas!!!

JR and I have also been enjoying the get well cards from my mother.  We get a huge kick out of guessing which way she will address the card.  We think she is playing a game........some days it is addressed to me with my legal hyphenated name, some days just Mrs. Married Name, some days, Mrs. Caroline Married.  There is always a different version of my name.  We think it is hilarious, and hope she is enjoying it as much as we are!  Hugs to Mom.

Also got to go over today and spend some time with my neighbor Rose.  Yay!  We had missed each other for the two weeks I was gone or busy.  We usually visit some every day after I walk the dog and we catch up on each other's lives.  She has the coolest hugest family!  I took some of the caramels over today, big hit with her husband, Bill.  And we found out that the gunshots last night were ............ gunshots!  There apparently was a scuffle in the church parking lot, someone emptied their gun into the air and were promptly caught by the cops.  Ah well.  I still feel safer in this house than in any other neighborhood I have ever lived in.

Hugs to all and good night!

Sunday, November 7, 2010

11-7-10 Double Happiness

I'm back.  We had to check out of the most wonderful hotel room on the planet.  After our night in College Station, we hopped back in the car and drove back to San Antonio, but not to Mom's house.  We spent a most luxurious night at the JW Marriott Hill Country San Antonio.  Yum.

The king sized bed was huge, and covered in a profusion of big white fluffy pillows.  I don't think there is anything more decadent than waking up in a nest of high quality linens and pillows.  Sigh.  I even got an extra hour with the time change to spend in our room.

We checked in around 6 pm last night and I had to take a conference call for the Winter Party that JR's unit is putting on next month.  After that we went exploring around the hotel.  I was hungry for dinner, but JR was not that hungry.  On the way here we had stopped in Snook, Texas at the Sodolak Diner.

You may have heard of it on the Food Network, they are famous for ....... deep fried bacon.  Yup.  That's right, you read that correctly.  Deep Fried Bacon.  Served with thick cream gravy.

Surprisingly, it was not greasy, but light and crispy.  The gravy was too much, luckily that was on the side so you didn't have to wade through that.  The owner came over to see how we were doing and told us the secret of the batter, there are no eggs in it, it is just a milk dredge and then into the flour.  They put yellow food dye into the batter so that it comes out golden.  JR also had their chicken fried steak, covered in thick cream gravy.  And onion rings.  I had a BLT, mostly because it came with a semblance of vegetables.  Well, their idea of vegetables was one slice of thinly cut tomato and one leaf of iceberg lettuce.  I think they couldn't believe someone would want something other than fried meat.

Anyway, as I had only had half of my sandwich, I was actually hungry for dinner.  We went downstairs to the Cibollo Moon restaurant and I had my favorite Texas treat.  Barbequed Brisket.  This wasn't quite up to Rudy's standard, but it was pretty good, and the bread was terrific, tiny little bite sized biscuits served with a very flavorful strawberry jam.  The biscuits had lovely large sugar crystals baked on top.  Scrumptious.

We left the restaurant and headed for the shops, were we saw lots of very nice stuff for sale.  A most beautiful pair of boots.  I do love cowgirl boots.  These were a faded red with a lace effect cut of natural buff leather application.  They were way over my budget (of $25).  So instead this morning I came back and purchased the hair band with a beautiful enameled yellow flower and rhinestones.

We then headed downstairs, where we found the A&M game was being broadcast in the main great room downstairs that is also an open bar area.  All of a sudden some beautiful music started playing.  I went exploring and found a terrific musician was playing to the open crowd.  Jeff Wood.  He played the guitar and sang the most wonderful songs.  A wide variety of music, all interpreted with a wonderful Texas twang.  He also played a lot of his own songs.  You can find him on the web at musicjeffwood.net.  We purchased one of his albums, which I am listening to as I write this from the upper lobby of the hotel.

JR wanted to stay here because guests can play at the golf course, a TPC course that he was very interested in playing.  And I am about to go in and have a wonderful experience of my own.  There is a full service spa, the Lantana Spa.

I am going to have the double happiness: "The ultimate luxury experience with invigorating peppermint and rejuvenating ingredients.  This treatment begins with a "facial" for the hands and feet, including a revitalizing massage and a gentle skin resurfacing that leaves your skin feeling silky smooth and renewed.  Finished with expert nail grooming and  polish application."

Doesn't that sound fabulous?  I think it is going to be great!  And it is JR's treat.  Isn't he great?  I love him.  So much.  He spoils me with his love.  Sigh.  Totally in love with him.

It might have taken me a long time to find him, but it was totally worth the wait.  I cannot imagine a better person to spend the rest of my life with.  Double Triple Happiness!

Traveling with CML

Traveling has been interesting.  The flight to Texas was ok.  We had arranged wheelchairs for me at the airport which was very good.  I had purchased a blowup pillow and blanket to use, Jennifer D had proposed this idea, that I not use the airline's things as they are not cleaned between flights.  I wore a surgical mask on each plane (one connection in Minneapolis) and lysol wiped the seats and tray tables.

We arrived in San Antonio just fine.  The oddest part was that while we were in the air, the pillow was fully blown up, but when we landed it was halfway deflated.  Made me wonder what the altitude was doing to my lungs which have to work overtime all the time.  Half of the time I am gasping for air.

So we spent a couple of lovely days with family catching up and playing cards and dice.  Then JR and I packed up and drove to A&M for his meetings.  That morning I had woken up feeling odd, for the past two days I had been having the bone pain again and having called my doctor, found out that they could not call in a prescription for pain meds across state lines, it had to be in writing.  But Dorothy (my mother in law) had some vicodin (which is what they were going to prescribe) so I took hers.  That totally helped with the pain, but I slept so deeply that I hurt my throat snoring.  I got up, got dressed and took the dog for a short walk.  I didn't have the energy to go as far as I had the day before.  And then I started to feel really ill.

I was extremely nauseous and kept running to the bathroom expecting to be sick.  But wasn't.  I thought this was left over from the Vicodin.  We packed up and got in the car.  Oh dear, driving while nauseous is terrible.  We had to stop a couple of time where I did get sick.  We finally got to A&M and checked into the hotel after a 4  hour car ride.  Ugh.  But while walking down the hall to the room, I realized the hallway was tilting.

Ah HA!  I was having a vertigo attack.  So I got to the room, hung my head off the side and slowly turned it the way my neurologist taught me.  Poof!  Nauseau gone.  There is too much that my body does wrong!  I can't keep up!  Sigh.  JR had left for his meeting, expecting me to be lying down sick the couple of hours he would be gone.  But I felt better and better as the time wore on.

My poor step-mother, Dagmar, called when I was feeling pretty bad.  Usually I try to keep a happy face on for everyone.  But there was no happy face to be found.  So she got the full brunt of my ickiness.  And she was fabulous, very kind and understanding.  Made me feel better.  After her call, I was able to get up and get dressed for the reception that we were going to.  And had a very nice time at the reception with JR.

It was held at the Alumni Center and was beautiful.  After that, we went to Rudy's BBQ (MY ABSOLUTE FAVORITE!!!)  and I was able to eat some brisket.  YUMMMMMMMM.

Ok, have just been told to hurry along, we are staying at the most wonderful hotel on the planet and it is almost check out time, but will tell more about that later..........

Wednesday, November 3, 2010

11-2-10 Chanterelles and Texas!


Saturday I was feeling super.  So I went with Kate to the Olympic National Forest and went mushroom hunting, it is still Chanterelle season here in the PNW.  Now for years, Kate has insisted that we pull over on the side of the forest service roads and then scramble up the sides of the mountains.  No trails.  No animal tracks.  Just straight up the sides of the mountains.  I can not usually go very high as I am not a mountain goat, and being shaped like a Weeble, it makes it hard to scramble.  

This year she reported that she had found some flat areas to go to and THEN go up the side of the mountain.  So since I was feeling so good, I was very excited to go.  I packed up the dog and all my mushroom hunting accoutrements, which consist of a couple of great mushroom guide books, some mesh bags, a little knife, and a fanny pack to put them in.

Much like our usual hikes, this one started off with about 3 stops, for gas, for food, for whatever....

The dog loves his McDonald's sausage patty, he sure does.

We get to the mountain we like best.  We hike in a few feet, Kate takes off, the dog follows her, and I take this opportunity to answer the call of nature.  I finish, Kate returns saying that there are NO mushrooms here. We get back in the truck and head deeper into the woods.  

We stop again.  We get out.  We hack our way into the bush, where it is relatively flat, and Kate goes up the side of the mountain.  I stand at the bottom, calling out, "Did you find any?"

"Whoop!" is the answer.  She has found some.  

"How high up are you?"

"Here."

I look up, she has somehow managed to get 100 feet up the mountain in 30 seconds.  Sigh.  I can't make it.  I am just too out of shape from being sick to really do it.  

I look down.  I am standing in a patch of Chanterelles.  I whoop myself.  And I start looking around, and there are more and more mushrooms appearing.  Five feet from the road!  

I fill up my first mesh bag.

We head out to another spot.  She takes off this time, down the side of a mountain (we had parked at the top), and I walk about 5 feet from the road.  And find mushrooms!

And I am done for the day.  We pile back in the truck and I am amazed that I have not been short of breath or fatigued for over 4 hours!

And then Sunday occurs.  I am so fatigued and short of breath that all I can do is put the mushrooms up to dry in the dehydrator.  We did not have many children trick or treating, and we turned away the 17 year olds with no costumes empty handed.  Strange neighborhood.

Monday the pain has returned in my left leg this time, and I cannot walk more than a block without panting and gasping for air.  I cannot even carry on a conversation normally.  But I clean the house a bit, go shopping for Kate, and pack my bags.  We are headed for Texas on Tuesday (today).

Woke up Tuesday feeling terrible.  Had almost no sleep from the pain, and we got up at 5 am.  Ick.  But I felt better by the time we got to the airport and decided to go on the trip and see what happens.  I really wanted to see my in-laws.  I adore them.  

So I was wheeled around the Seattle and Minneapolis airports wearing my silly surgical mask with my Lysol wipes in hand, wiping all the surfaces I came in contact with.  And finally arrived here in San Antonio.  

We are headed out to Fort Sam Houston tomorrow with JR's mother and sister to tour the grounds and see the exchange.  

Hugs.